Ainsley Loken
My Personal Story

It was only one and a half years ago that I was diagnosed with multiple sclerosis, but it seems like a lifetime ago that this journey began.  In my twenties I used to hike the Rocky Mountains.  I remember the times during the seventy-mile long hikes that I thought I simply could not go on...

I had no choice but to continue because otherwise, I would perish in the mountain wilderness.  My feet were blistered and bleeding.  I was soaked from sweat and the horseflies were hungrily ripping at any exposed flesh.  This definitely gave new meaning to the expression "not a happy camper".

At one point we came to a ravine about 200 feet deep.  The only way to get to the other side was to crawl along a fallen log above the ravine.  The other hikers effortlessly made their way across the log.  I stood there terrified recognizing that I had no choice.  I could not go back the fifty odd miles by myself so I HAD to crawl on the log to the other side.  To this day I do not know how I managed to do it.  I remember not looking down, and slowly inching my way across the log.  When I stood up on the other side my toes were tingling from fright.  I also remember the wonderful feeling I had when I completed the hike.  I had been where very few people had ever been.

I ran through snowfields on mountaintops, played in glacier lakes and hiked along fresh grizzly bear tracks.
I HAD SURVIVED!

Now, twenty years later, I was facing a new challenge.  One that would prove to be harder and scarier than any of the others...  One August morning, after a week of hot weather, I awoke to find that I was unable to walk properly and that my left leg was very weak.  Eventually, I could not keep my balance and would fall constantly.  My legs were numb to the waist.  For a short time, I lost my peripheral vision and had tingling to both sides of my face.  An MRI revealed that I had scarring on my brain which was a definite indication that I was dealing with multiple sclerosis.  Just like during the mountain hikes I was not sure I could handle this.  I felt very alone and scared.  I felt less of a person.

The first thing I said to my husband upon hearing the diagnosis was "Do you still love me?"  I would have understood if he did not want to go through this.  I had always been an independent, strong person and now, I could barely walk.  My husband, family and friends rallied behind me and gave me a lot of encouragement and support.  The hike had just begun.  I learned that doctors do not know much about this disease.  I was my doctor’s only patient dealing with this, and so it was a learning experience for both of us.

First, I decided to get my life back in balance.  That meant that my BODY, MIND and SPIRIT had to come together and work as a unit.  For many years I had neglected myself in favour of nurturing others and now I was paying the price.  How could I be of help to others if my own life was in disarray?

BODY: I researched the best nutritional supplements available and discovered USANA. (www.usana.com) Especially important are omega 3's and 6's (essential fatty acids).  Every day I walk three quarters of a mile through a forest to a small pond.  I struggle to walk this distance and sometimes I am not sure I can make it home, but it is worth it just to see my dogs run and my three cats amble along beside me.  Aside from daily supplements, once a week, I give myself an injection of Avonex in the muscle.  If children can inject themselves daily for diabetes then who am I to complain about a weekly injection?

MIND: I am learning to meditate.  Once a day I sit quietly with no man made sounds to interrupt my mind.  I listen to the sounds of the forest and to the peace of nature around me.  I am refreshed.

SPIRIT: I am so thankful, daily, for the people that enrich my life and the blessings I receive.  My faith in God has been renewed.  When something negative takes place in my day I try to say "thank you" because from this I will learn.  Truthfully, I have not mastered this yet.  The human response is to retaliate or defend.  These strong emotions coupled, let’s say, with PMS could be dangerous.  I recall the bumper sticker that reads "Watch out, I have PMS, and I have a GUN!"  Seriously though, I was in a situation where the people around me were angry, stressed, spiteful and jealous.  I could cut the tension with a knife.  I took this problem to God in prayer and the answer I received was simply, "Come from a position of love".  Oh, this is hard to do.

It is often easier and faster to lash out in anger but it is worth while, instead, to respond in love.  The other person will either walk away baffled or respond in kind.  Having taught elementary school in my past I often observed that adults are like 'big kids'.  They have often not grown out of their insecurities--they have just learned to mask them. Come from a position of love--It works!

While walking to the back pond the following thought occurred to me;

Ones life is like a magnificent river and ones spirit is the power or life-force behind this river.  Once in a while a boulder juts out in the middle of the river. This boulder represents a person, or situation that tries to obstruct the flow of ones river.  Most often we spend a lot of precious time and energy trying to move the boulders out of the way.

Rather than bashing ourselves against these obstructions we should go around them and give thanks to them for it is because of their presence that we have flowed along a different, and perhaps unexpected path, thus having more adventures and excitement along the way.  I can think of a couple of sharp edged boulders, and even a few good sized rocks in the middle of my river.

I wonder where my river will travel as a result of them?  Thank you rocks.  Thank you boulders.  I am writing this because I am trying to make something positive out of a negative situation.  I want you to know that if I can handle this so can you.

DON'T GIVE UP!
Know that you can make it to the other side-- over the ravine in your life.
The hike is worth it!

Let me know how you are doing.  I care. 
ainsley@artbyainsley.com

Some powerful books I recommend are:


Lord of My Rocking Boat - by Carole Mayhall


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The Artists Way - by Julia Cameron
To an artist, there is nothing more valuable than creativity. Creativity fuels all expression, but what happens when the tank runs dry? The Artist's Way: A Spiritual Path to Higher Creativity leads readers through a 12-week program designed to reawaken and stimulate the senses. It knocks out the blocks of fear, jealousy, guilt and addictions and opens up the doors so that artistic confidence can flourish. Linking creativity to spirituality, the book shows how to channel your energies towards a more productive and fulfilling artistic life.


Simple Abundance - by Sarah Ban Breathnach
Daily meditations can help you concentrate on encouraging behaviour, reflection and strong beliefs that illuminate your inner self. This is the essence of simplicity; it doesn't mean doing without, but rather knowing what you really need.  Sarah Ban Breathnach is the innovator behind Simple Abundance, a featured segment on The Oprah Winfrey Show.


*Note that I do not capitalize the words multiple sclerosis, ms etc.  I refuse to give it recognition as anything important.